Difference between revisions of "Personalized Medicine: Precision versus Privacy (Biotechnology and Society 2016)"
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==== Extra Links for the Policy Czar==== | ==== Extra Links for the Policy Czar==== | ||
Revision as of 15:23, 17 October 2016
Download Pre-Discussion Questions (PDF)
Download Policy Czar Template (MS Word)
Everyone: Personalized Medicine Case Study
Required Reading/Viewing
- The rise of the 'narciss-ome' Carina Dennis Nature March 16 2012.
- Examining His Own Body, Stanford Geneticist Stops Diabetes in Its Tracks Jon Cohen Science Now March 16, 2012.
- Chen R et al. (2012) Personal Omics Profiling Reveals Dynamic Molecular and Medical Phenotypes. Cell 148:1293–1307.
1. Personalized genomics
Extra Links for the Policy Czar
- 23andme 23andme Company Website.
// $99 Personalized genotyping service.
- Personalis Personalis Company Website.
// Company for "genome guided medicine".
- https://www.23andme.com/en-gb/ | * https://www.23andme.com/en-gb/health/Warfarin-Coumadin-Sensitivity/
- http://www.nature.com/news/personalized-medicine-time-for-one-person-trials-1.17411
- Salari2012 pmid=22659199
// Article describing several personalized drug treatments.
2. Crowd-sourcing medicine
Extra Links for the Policy Czar
3. Privacy of Public Data
Extra Links for the Policy Czar
- http://blogs.nature.com/spoonful/2013/01/anonymity-not-guaranteed-identity-of-personal-genomic-dna-revealed-by-web-search.html
- https://www.genome.gov/24519851/
- http://biogenfutur.es/
- Ormond2010 pmid=20434765
// Article discussing issues with using whole-genome data collected from patients.
- Gymrek2013 pmid=23329047
// Article describing the identification of anonymous patients from genetic data.
