Difference between revisions of "Personalized Medicine: Precision versus Privacy (Biotechnology and Society 2016)"
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==== Extra Links for the Policy Czar==== | ==== Extra Links for the Policy Czar==== | ||
| − | * [https://www.23andme.com/ 23AndMe Company Website]. <br> $99/$199 Personalized genotyping service. What methods do they use? What information do you get? | + | * Salari K, Watkins H, Ashley EA (2012) [https://www.ncbi.nlm.nih.gov/pubmed/22659199 Personalized medicine: hope or hype?] ''Eur Heart J'' '''33''':1564–1570.<br> What are currently the most impactful areas of precision/personalized medicine? What are future areas of promise? |
| − | + | * [http://www.nature.com/news/personalized-medicine-time-for-one-person-trials-1.17411 Personalized medicine: Time for one-person trials] Nicholas J. Schork ''Nature'' April 29, 2015. | |
| − | * [http://www.nature.com/news/ | + | * [https://www.23andme.com/ 23AndMe Company Website]. <br> $99/$199 Personalized genotyping service. What methods do they use? What information do you get? See especially, [https://www.23andme.com/en-gb/health/Warfarin-Coumadin-Sensitivity/ Warfarin sensitivity FAQ] |
| − | + | * [http://www.nature.com/news/out-of-regulatory-limbo-23andme-resumes-some-health-tests-and-hopes-to-offer-more-1.18641 Out of regulatory limbo, 23andMe resumes some health tests and hopes to offer more] Erika Check Hayden ''Nature'' October, 27 2015.<br> What adjustments were made to 23AndMe services after it was temporarily shut down by the FDA? Why? | |
== 2. Crowd-sourcing medicine == | == 2. Crowd-sourcing medicine == | ||
Revision as of 16:22, 17 October 2016
Download Pre-Discussion Questions (PDF)
Download Policy Czar Template (MS Word)
Everyone: Personalized Medicine Case Study
Required Reading/Viewing
- The rise of the 'narciss-ome' Carina Dennis Nature March 16 2012.
- Examining His Own Body, Stanford Geneticist Stops Diabetes in Its Tracks Jon Cohen Science Now March 16, 2012.
- Chen R et al. (2012) Personal Omics Profiling Reveals Dynamic Molecular and Medical Phenotypes. Cell 148:1293–1307.
1. Personalized medicine
Extra Links for the Policy Czar
- Salari K, Watkins H, Ashley EA (2012) Personalized medicine: hope or hype? Eur Heart J 33:1564–1570.
What are currently the most impactful areas of precision/personalized medicine? What are future areas of promise? - Personalized medicine: Time for one-person trials Nicholas J. Schork Nature April 29, 2015.
- 23AndMe Company Website.
$99/$199 Personalized genotyping service. What methods do they use? What information do you get? See especially, Warfarin sensitivity FAQ - Out of regulatory limbo, 23andMe resumes some health tests and hopes to offer more Erika Check Hayden Nature October, 27 2015.
What adjustments were made to 23AndMe services after it was temporarily shut down by the FDA? Why?
2. Crowd-sourcing medicine
Extra Links for the Policy Czar
3. Privacy of Public Data
Extra Links for the Policy Czar
- http://blogs.nature.com/spoonful/2013/01/anonymity-not-guaranteed-identity-of-personal-genomic-dna-revealed-by-web-search.html
- https://www.genome.gov/24519851/
- http://biogenfutur.es/
- Ormond2010 pmid=20434765
// Article discussing issues with using whole-genome data collected from patients.
- Gymrek2013 pmid=23329047
// Article describing the identification of anonymous patients from genetic data.
