Personalized Medicine: Precision versus Privacy (Biotechnology and Society 2016)

Personalized Medicine: Precision versus Privacy (Biotechnology and Society 2016)

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Schematic of personalized medicine. From bayerpharma.com.

Everyone: Narciss-ome

Required Reading/Viewing

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1.  ://www.nature.com/news/the-rise-of-the-narciss-ome-1.10240
2. Cohen, J. "Examining His Own Body, Stanford Geneticist Stops Diabetes in Its Tracks." Science Now March 16, 2012. Read Article

   News article about personalize omics study.

3. Scientific article about an integrative personalized omics profile of a single individual over time.

1. Personalized genomics

Extra Links for the Policy Czar

1. 23andme 23andme Company Website.

// $99 Personalized genotyping service.

1. Personalis Personalis Company Website.

// Company for "genome guided medicine".

• https://www.23andme.com/en-gb/ | * https://www.23andme.com/en-gb/health/Warfarin-Coumadin-Sensitivity/
• http://www.nature.com/news/personalized-medicine-time-for-one-person-trials-1.17411

1. Salari2012 pmid=22659199

// Article describing several personalized drug treatments.

2. Crowd-sourcing medicine

Extra Links for the Policy Czar

• https://www.ncbi.nlm.nih.gov/pubmed/25562203
• http://www.raregenomics.org/

3. Privacy

Extra Links for the Policy Czar

• http://blogs.nature.com/spoonful/2013/01/anonymity-not-guaranteed-identity-of-personal-genomic-dna-revealed-by-web-search.html
• https://www.genome.gov/24519851/
• http://biogenfutur.es/

1. Ormond2010 pmid=20434765

// Article discussing issues with using whole-genome data collected from patients.

1. Gymrek2013 pmid=23329047

// Article describing the identification of anonymous patients from genetic data.