Personalized Medicine: Precision versus Privacy (Biotechnology and Society 2016)

Personalized Medicine: Precision versus Privacy (Biotechnology and Society 2016)

Download Policy Czar Template (MS Word)

Schematic of personalized medicine. From bayerpharma.com.

Everyone: Personalized Medicine Case Study

Required Reading/Viewing

• The rise of the 'narciss-ome' Carina Dennis Nature March 16 2012.
• Examining His Own Body, Stanford Geneticist Stops Diabetes in Its Tracks Jon Cohen Science Now March 16, 2012.
• Chen R et al. (2012) Personal Omics Profiling Reveals Dynamic Molecular and Medical Phenotypes. Cell 148:1293–1307.

1. Personalized genomics

Extra Links for the Policy Czar

1. 23andme 23andme Company Website.

// $99 Personalized genotyping service.

1. Personalis Personalis Company Website.

// Company for "genome guided medicine".

• https://www.23andme.com/en-gb/ | * https://www.23andme.com/en-gb/health/Warfarin-Coumadin-Sensitivity/
• http://www.nature.com/news/personalized-medicine-time-for-one-person-trials-1.17411

1. Salari2012 pmid=22659199

// Article describing several personalized drug treatments.

2. Crowd-sourcing medicine

Extra Links for the Policy Czar

• https://www.ncbi.nlm.nih.gov/pubmed/25562203
• http://www.raregenomics.org/

3. Privacy

Extra Links for the Policy Czar

• http://blogs.nature.com/spoonful/2013/01/anonymity-not-guaranteed-identity-of-personal-genomic-dna-revealed-by-web-search.html
• https://www.genome.gov/24519851/
• http://biogenfutur.es/

1. Ormond2010 pmid=20434765

// Article discussing issues with using whole-genome data collected from patients.

1. Gymrek2013 pmid=23329047

// Article describing the identification of anonymous patients from genetic data.